Time flies when you're not at the hospital and yet again, I've fallen behind in keeping the web site up to date. Back in early October, Curtis finished round four of immune therapy after only one day of treatment. He reacted to the 50% dose so quickly we were concerned what the outcome might be if we continued with any more. Based on that reaction, and his reaction in round three, everyone felt it was time to seek the advice of the study chair as to whether or not Curtis should receive any further treatments and if so at what dose. A few weeks ago we sat down with our doctors to discuss just this, and the general consensus was that Curtis was most likely experiencing an allergic reaction to the IL2, and it would not be considered safe to continue with any further treatments. Although Curtis was technically eligible for two more rounds of immune therapy, we were all relieved by this decision and we feel confident it was the right one.
Curtis has also undergone another round of tests and scans and we are pleased to share the incredible news that all of these tests were negative and Curtis remains in remission. So at this point Curtis is officially finished treatment again and he can return to enjoying life again as a somewhat regular six year old boy. On the advice of our doctors, we have chosen to leave his port in for six months, which means monthly visits to CHEO to have it flushed (easy stuff - Curtis is a pro at this now). We will also be scheduled for tests and scans every three months for the first year he's in remission and every six months for the two years following that.
We are so thrilled that Curtis has once again reached the point of remission, but it is not lost on us that he could relapse again in the future. This isn't something we intend to dwell on, in fact we intend to live each day to the fullest, but it will always be in the back of our mind.
Thank you to everyone who has prayed for our dear little Curtis, and to all who have supported us along the way. It's been another long road and a tough battle, but we've made it through in part because of you. A special thank you once again to the determined nurses and doctors at CHEO who have never given up on Curtis. We will be forever grateful for all you've done. Thank you Anna, for making us believe Curtis could be a miracle!