Well things aren't moving so quickly with the immune therapy afterall and at this point we're not sure what will happen next. In order to officially enroll Curtis on the immune therapy study, he needed to have another round of scans as one of the criteria for the study is that tests results be no older than three weeks. Curtis had those tests last week. Here's the thing -- ALL of his tests, including the bone marrow biopsy which tested positive for disease just a few weeks ago, came back negative! This appears to be great news on the surface. The study doctors consider Curtis to be in "remission" again and won't accept him into the study as a result. The reality is however, that a small amount of disease was found in his body just a few weeks ago and we can't breath easy knowing that.

Dr. Johnston and the study team feel it would be beneficial to have another bone marrow biopsy. Curtis is having this test done today. Results will be back in a week, and if positive, Curtis will again be eligible for the study and would be scheduled to begin July 10th. Should the results come back negative, he will be closely monitored and retested in one month.

We have so many conflicted feelings about all of this. One moment, a huge sense of relief and excitement that the disease has not spread and Curtis can go back to enjoying his life. The next moment, fear and impatience kick in. When will it come back? Why can't we just get moving on immune therapy and give Curtis the best chance he has to be cured now?!

This is now the third time that we've been down the dark path of possible disease progression, and somehow, Curtis just refuses to give in to it. He's such a fighter, and has an inner strength beyond our wildest imagination. We feel truly blessed to be his parents!!