Just a few days ago we shared the wonderful news on Curtis' test results. Last Friday morning however, we were given some devastating news that changed everything. Our worst fear has come true. The cancer has returned. The bone marrow sample taken from the right side of his hip is showing new signs of disease. The MIBG (specifically to test for the presence of neuroblastoma), MRI and bone scans all looked fantastic. But in our excitement to share the news, we forgot about the final bone marrow results that had yet to be received. We learned the results of that last test in what was supposed to be our end of treament meeting with our oncologist Friday morning.
It's a painful reminder of how hideous neuroblastoma is, preying on young innocent children, often going into hiding during remission only to resurface again later even more agressively. We are deeply saddened by this and what may lie ahead but we also have reason to be hopeful. The doctors want to begin an immune therapy that shows a lot of promise. They are extremely optimistic that Curtis is the ideal candidate for this study as his disease is very minimal at this point and has not spread. We're also optimistic and believe strongly in Curtis being able to fight this disease yet again.
It was heartbreaking inside giving the news to Curtis. He has gone through so much. To make matters more difficult, Friday was to be a very special day for Curtis at school. He was one of the recipients of the Positive People Awards for personal responsibility at Arklan. We are so proud of him. Julie and I felt that we could not take away this special day for him and did not tell him until the following day. He was obviously saddened by the news initially but being the amazingly strong boy he is, he recovered quickly and is taking the positive attitude he always has taken in the past.
So we will head down the road of treatment once again, thankful that this was detected early and that we have an amazing hospital like CHEO that we can depend on to give Curtis the absolute best treatment and care anyone could ask for. The exact timing of things still need to be ironed out but I'm sure things will move quickly.
On a related note, the CHEO telethon which took place over the weekend, raised almost 5 millions dollars. Always emotional to watch the televised event, but especially so this year given our history with CHEO and the road ahead.
Go Curtis Go - you can do this!! Everyone loves you very much and are with you every step of the way,cheering you on, as you once again do battle with your cancer.
Keep those smiles coming and soon you'll be coming camping with us - we have to feed those ducks, catch some fish and do lots of other things as well.
See you soon, Hugs & Kisses (for you to wipe off)
xxxxxooooo
Julie and Trevor, The news of recurrence is most definately devastating, We will continue to pray for Curtis and your family, Your incredible focus and dedication to family will again guide you through this challenge. I truely believe Curtis is a gifted very special boy who is so wise beyond his tender age, his courage is that of a soldier and I know he will accept this challenge and be the brave little trooper I know. My thoughts are with you, Jen Irwin.
Posted by: jen irwin at June 14, 2006 08:23 PM