July 03, 2005

Clinic Visits

An important part of Curtis' treatment protocol, is bi-weekly visits to the Medical Day Unit at CHEO. Typically we arrive at the clinic around 9:00 a.m., and we're there for at least couple of hours. One of the nurses on the floor, generally Anna, will come and find us in the playroom shortly after our arrival. Curtis and I go with the nurse to a "special area" where he has his blood pressure and temperature taken, plus he is weighed and measured. Once all of his vitals have been taken, we're taken to another "special area" where Curtis' blood is drawn. The only exception to this is on Mondays, when Curtis needs to have his dressing and caps changed. On these days, blood would be taken from his broviac line instead of from his arm or finger. While we wait for the results of our blood work, we generally go back to the playroom and work on a craft or play some games. Occasionally, the Child Life Specialists and volunteers will be doing some "cooking" with the kids in the kitchen. Last week they made cupcakes baked in ice cream cones. (Very good stuff!!) Once our blood results come back, we would be free to go home unless Curtis' platelets or hemoglobin were low. In that case, we would stick around for a transfusion. When we're at clinic for a readmission visit for our next round of chemo, we would also have a visit with the oncologist. Although this all may sound very overwhelming, it actually isn't. All the nurses and Child Life Specialists work together to make things run as smoothly as possible and there are many volunteers more than willing to take Mac for a walk if things get crazy for a minute!

Posted by admin at July 3, 2005 09:26 PM
Comments

Curtis,
I live in Carleton Place and read of you in the Weekender. I also work at MDS Nordion where we manufacture the radioactive Isotope for the MIBG scan you may have some experience with. Please know that we here at MDS Nordion many who are parents, go to work every day knowing there are babies such as you who are counting on us to do our job to the best of our ability. And we do! God bless you and keep you safe until a cure can be found.
Curtis' Mom and Dad...please let me know your address so I may send you a book about another young boy who lived with this terrible disease. It is called "Ya can't let cancer ruin your day, the James emails" by Syd Birrell.

Leslie

Posted by: Leslie Garagan at July 15, 2005 09:17 AM

Good morning to you all.

The Royal Bank in Carleton Place is really excited to be able to help in bringing awareness of Curtis's condition helping to raising funds for his treatment. It is very important to all of us that when an opportunity to show our community that we care comes along that we do everything we can to help, this is especially important when a child is involved.
We have always been very fortunate with the incredible support shown by our community and look forward to having a very successful BBQ on August 5.
You are in our thoughts and prayers.
Looking forward to meeting you,

Sharon

Posted by: Sharon Craft at July 22, 2005 09:21 AM